Comments on: Making The Most Of Medicaid

By: macdoodle

macdoodle — Tue, 22 Sep 2009 15:17:05 +0000

IN CA those with developmental delay connected with regional centers get better help and have more medicaid coverages than those multi or severely disabled without those lobbyists.

If anyone knows of any legal or other resources to help the rest of us – let me know.

Sadly, Independent living centers, advocates who are not legally or medically trained and due to special funding streams by group vs need, and local gov’t funding that creates political footballs out of the clients, also seem to help create the divide in services and representation.

Discrimination due to types of disability, including ,misdiagnoses for the systems needs, is pervasive through all the systems.

There no legal representatives to do individual ADA/504 cases in appeals or in court.
No legal reps who do ADA/504 in VOCN Rehab services .

That is the voice and access we many are missing.

By: twinkie1cat

twinkie1cat — Mon, 21 Sep 2009 00:09:47 +0000

Jward52 is right. I was approved for SSDI and promptly cut off of Medicaid which I got while I was appealing because I raised so much cain when I got unnecessary infection after a mastectomy at the public hospital that they knew they needed to stay away from there. Now I can’t get Medicare until next July! I have no health care and part of my disability involves respiratory issues—-issues caused by our dear Republican FEMA putting me in a poisonous RV after Katrina (I was a fully productive school teacher until then) and that caused me to be on a respirator last January. Health and Hospitals department said I could “buy-in” to Medicaid if I got a part time job. But I am worried about swine flu and am not strong enough.

This is why it is time for universal health care with a government option. But you know what? The conservative anti-health care Republicans even shout over people with disabilities and their families in their greed to prevent us from getting services. All disabled people who function above the severely retarded level need to register to vote and write or call their congresspeople in support of health care. Their families need to come off any conservative values they have and support it also. No more excuses. America needs health care.

Oh, and two of the states listed as having the worst Medicaid, also have the highest death rates from cancer—Louisiana and Mississippi!

By: jward52

jward52 — Thu, 10 Sep 2009 00:46:16 +0000

What do You mean, – making the Best of the Medicaid Joke??!! – We live in Ohio, and Medicaid Is almost worthless to so Many poor here!! We Live in “poverty’” – on SSDI!! – And We can never access Medicaid,- period!! We have to make a Laughable “Spend-Down”!!! This is criminal! Living in “poverty”- Then how does anyone meet a “spend-down??!! We are always $2-300 a month short,- so where does a spend-down come from? We can’t print $Money like the Criminal Federal Reserve!! – The people on SSI,- or Supplemental Security Income have it made!! We on SSDI whom still Live in poverty get no Medicaid!!! We worked & paid Taxes for Many Years, and are now left out!!! Our so-called Congress could care less!! – Congress Should be Ashamed!! – Past Hard-Working tax payers can not get the $Help that SSI Welfare People get!! – Discrimination to the max!!! We on SSDI were forced to pay into SSDI, – and now we get screwed again!!! Where is the so-called Supreme Court while this Blatant discrimination by Congress goes on??!! – jward52