Research on parents and children with autism has grown exponentially in recent years. Now, grandparents are invited to get into the act too.
Since 2007, over 30,000 individuals with autism and their immediate families have submitted information about themselves to The Interactive Autism Network (IAN). Researchers then mine data from the registry to learn more about autism and to find subjects for studies.
Now, IAN is surveying grandparents of individuals with autism about their experiences. The anonymous survey asks grandparents of biological, adoptive or step-grandchildren how common autism spectrum disorders are in their family, where they get information about autism, how well they cope with having a grandchild on the autism spectrum and if their friends and family are supportive.
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