After Uproar, Girl With Disability To Receive Transplant
A girl with intellectual disability who was reportedly denied a kidney transplant earlier this year because she’s “mentally retarded” will be receiving a new organ after all.
In a blog post this week, Chrissy Rivera said doctors have cleared her daughter, Amelia, for a transplant.
Rivera said that she will donate a kidney to her daughter once the girl’s kidney function drops to 10 percent from its current performance of 14 percent.
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“Our family received word about a month ago that Amelia is officially approved for the kidney transplant. All of her specialists, and some we have only just met, have agreed that there is no medical reason for her not to have the transplant,” Rivera wrote.
The Riveras received national attention in January when Chrissy wrote a blog post indicating that a doctor at the Children’s Hospital of Philadelphia denied then-3-year-old Amelia a transplant citing concerns about her quality of life given that she’s “mentally retarded.”
Amelia has Wolf-Hirschhorn syndrome, a chromosomal disorder affecting about 1 in 50,000 people that’s marked by the presence of intellectual disability, developmental delay, seizures and distinct facial characteristics.
In response, more than 50,000 people signed an online petition prompting the hospital to reconsider Amelia’s case.